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marcia stone

Anna Marie --Look through pub med for researchers working on prion diseases and/or various support groups. Perhaps one of our members will have a suggestion but it's unlikely (impossible actually) that anyone can help without seeing the patients. I'm a journalist and not at all qualifed to give you medical advice.

Prion diseases take so long to actually cause disease it's unlikely they're responsible for anyhing acquired within 5 years. However Stanley Prusiner runs a prion center at the U of California S.F. --you might want to contact them. They'd also have people familiar with various viral and toxin-caused diseases and could make a differential diagnosis.

I do hope someone, somewhere can help.

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